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MS Family & Friends

MS family and friends’ survey (UK)

This survey opened on March 1 2019 and will close on May 31 2019.

Please scroll to the bottom to complete this survey.


Family and friends play a vitally important role in helping people with Multiple Sclerosis (MS) to live well. The MS Society wants to provide services that will help you most and campaign about the things that matter to you. That’s why we want to hear about your experience supporting someone with MS.

What you tell us will help improve the support we offer and strengthen our campaigns to improve health services, social care, the welfare system and more. We know family and friends supporting people with MS face multiple challenges across the UK and too often do not get the support they need. We will use the results of this survey to tackle these challenges head on.

Should I complete this survey?
Please complete this survey if you live in the UK and support a family member, partner, or friend with MS that also lives in the UK. By ‘support’ we mean regularly helping that person carry out everyday activities (such as household chores, getting dressed, washed, getting out of the house, organising appointments etc).


How will my information be used?
Your answers will be used to shape our work over the next few years to ensure family and friends of people with MS are getting the best support possible.Your answers may form part of report that could go on our website, including quotes, but we will ensure that the report is anonymous so no one will be able to identify you from your answers. We will hold the results of this survey for a maximum of 2 years, after this the data will be stored completely anonymously.

Why do you need my postcode?
We are asking you for your postcode so that we can determine the area you live in. This will help us identify areas with good as well as poor provision of services. Your responses will be kept confidential and we will not analyse or report our findings in a way that would allow you to be identified. You are free to withdraw from the survey at any point should you choose to do so.


Your details are safe with us. We will never sell them or swap them with anyone else. We respect your privacy as a human right. We promise to respect the personal information you provide us. We don’t want to use it in a way that you won’t expect. You can view our privacy notice here.

If you want to change the way we use your data or if you have a question about how we use your personal information, please get in touch by emailing supportercare@mssociety.org.uk or by calling our friendly Supporter Care Team on 0300 500 8084.

If you’d like to talk to someone about any of the issues this survey raises, you can contact the MS Society Helpline free of charge on 0808 800 8000 (Monday to Friday 9am-9pm) or by email to helpline@mssociety.org.uk